A happy first birthday in home sweet home

Happy Birthday Zion…you don’t know me, you don’t know anything going on in the world right now at the tender age of 1 – but you are giving me so much strength right now……You are amazing and I thank God for you little angel!

(Written by one of Zion’s faithful friends)

It seems surreal that we finally reached the special day – Zion’s first birthday! Our little bundle of awesomeness arrived on March 18, which also happens to be Trisomy 18 Awareness Day. We simply knew this kid would be special with such a divinely appointed birth date. I recall praying to God before Zion’s birth, still trusting the outdated statistics, asking Him to give us a chance to see our son take just one breath. Well the good Lord has given us exceedingly abundantly more than one breath – He has given Zion one year. Thank You to our Lord and Savior Jesus Christ!

You might be wondering how we celebrated Zion’s birthday? Well, we (our home nurse and I) spent most of the day packing Zion up to go portable, and taking him to Children’s for his first (quite long) Complex Care (pediatrician) visit. I tried so hard to get this appointment on a day other than his birthday, but was unsuccessful. Let’s just say that it is quite a production to actually pack Zion up and go somewhere with him in the car. It certainly was a learning experience and we definitely logged in some good practice hours. And due to the current pandemic we are in, any sort of a birthday party was out of the question since we are practicing strict quarantining. Thankfully, little Zion didn’t mind at all, of course, because he gets his coveted “presents” now every day [kisses, hugs, snuggles and conversation].

Life is now filled to the brim with busyness. I have so much I want to share, but so little time (and brain power). So in the meantime I wanted to share (visually) how Zion is doing since coming home because many have asked. Thankfully, a picture is worth a thousand words. We hope these photos serve as a blessing to your soul to see the fruit of your priceless prayers! I will share more details about life at home sometime soon. We love you all. Thank you for praying and for supporting us. God has been so faithful and is continuing to provide in so many ways.