Happy Birthday Zion…you don't know me, you don't know anything going on in the world right now at the tender age of 1 - but you are giving me so much strength right now……You are amazing and I thank God for you little angel!(Written by one of Zion’s faithful friends) It seems surreal that we … Continue reading A happy first birthday in home sweet home
Tag: trisomy 18
His manifold ways
Today was the day! Discharge day! But the day has come and gone and Zion is not here at home with us - he is still in the hospital. Long story short, the hospital wasn’t able to get Zion’s most important (pulmonary hypertension) medication straightened out with our insurance in time, so he had to … Continue reading His manifold ways
We see the light!!!
On the 18th of February, our little “punkin” reached eleven months old. Hallelujah! We have come so far with Zion as his first birthday is now officially in close sight! Lately, the medical team all seem to repeat the same thing, “He’s getting so big!” Zion is continuing to grow and is currently 20 adorable … Continue reading We see the light!!!
Praying for perseverance
Today is February 4th. I'm sure many are wondering if Zion made it home today. Well, the short answer is, "No". The nursing agency wasn't able to get us staffed with the nursing hours that we needed in time, so Zion's departure has been delayed to an unclear date, possibly falling in the week after … Continue reading Praying for perseverance
February 4th!!!
It’s official, Zion has a DISCHARGE DATE on the books - February 4th it is! It's hard to believe this moment has finally arrived! Now I must temper this amazing news by also sharing that this doesn’t necessarily mean that Zion is guaranteed to go home on this day, because we must first have our … Continue reading February 4th!!!
Zion’s first Noel
We hope everyone reading this had a blessed and Merry CHRISTmas! We stayed local (since that's all we can do now with Zion being in the hospital) and we enjoyed Christmas with just our little family (minus Zion... we took him his presents which we helped him open at the hospital). After posting my last … Continue reading Zion’s first Noel
Transition time
I celebrated my 41st birthday on Monday and God showed me how much He loved me despite it being a very busy day dealing with two of my children. I went to spend that morning with Zion and poured my heart out to the team since this was the beginning of the week that they … Continue reading Transition time
Shrinking, in a good way
Zion John - 8 months old My uncle said to me a couple months ago how God called us to this mission with Zion in the same way He called Noah. Noah didn’t feel equipped or have the skills, but God called him anyway, and Noah pressed forward and trusted God. That’s what my husband … Continue reading Shrinking, in a good way
Turning over every rock
It happens the same way each time. When my cell phone rings in the middle of the night, or in the early morning hours, I respond by jumping up from a dead sleep, while repeating “Oh no...Oh no...Oh no...”, as I clumsily grab for my phone in the dark. I’ve lost count how many times … Continue reading Turning over every rock
Something about Sunday mornings…
Shift change. This is a hospital term used to describe the hour in the day when the day nursing team passes the baton to the night nursing team as they “give report” about their specific patients and the happenings during the day. Shift changes at Zion’s hospital usually happen in the 7:00 hour, both in … Continue reading Something about Sunday mornings…
