It's Monday in Omaha. Normally, on a Monday, my goal would be to rush to the hospital first thing in the morning in order to catch any doctors who come by the bedside. The first day of the week is always busy with lots going on. It's sort of an exciting time for movers and … Continue reading There’s peace in surrender →

It's Sunday in Omaha. George and the kids arrived Thursday, and we checked out a local church today. After the trying few days that Zion has had, I definitely needed to be refreshed in the Word and surrounded by the body of Christ. Ever since my Omahappiness post, Zion took a turn for the worst. … Continue reading Twists and turns →

We waited all day yesterday for ENT to arrive because Zion had a scheduled trach change. The decision was made that he was ready for the next size up trach. I was so excited to have this happen for Zion because I have been wanting to see how he does with a bigger trach for … Continue reading Another aborted mission →

I coined this term today, because it is a real thing. Omahappiness | oma'hapēnes | (noun) - the joy that one experiences when they arrive at Omaha Children's and realize how much more wonderful this place is than any other hospital: I have been full of Omahappiness since arriving here. It’s been quite a trying … Continue reading Omahappiness 🙂 →

Thank you everyone for your perpetual prayers for Zion! Today he is doing okay. But boy is this journey all over the place. By the time I get around to writing these blog updates his status can change multiple times! We are definitely developing a thick skin for getting bad news. A few days ago … Continue reading Bumps in the road →

Exodus 15:13 says... You in Your mercy have lead forth the people whom You have redeemed; You have guided them in Your strength to Your holy habitation. I'm comforted by this scripture as we continue on our journey with Zion because I know that the Lord is who is leading and guiding us every step … Continue reading A sweet reunion →

Here's a small 14th century chapel in Wells, England where prayers were lifted by our Grecian friends in the faith for Zion on the day of his surgery... the sweet aroma of prayers is floating up from around the globe as our Zion turns 100 days old today! Here are some smiles and yawns from … Continue reading 100 →

A gift for Zion from our friends Suzy & Eric - a teddy bearing mommy's nickname for Zion 🙂 We continue to THANK everyone for all the prayers you are still lifting up for our child. The last 24 hrs have been very busy, but when checking in on social media it's been overwhelming to … Continue reading Death couldn’t hold him →

Zion John is now 3 months old! Glory to God! And he has also doubled his birth weight as he's packed on 10lbs and 8 oz! So far people are guessing he might end up a RED head?! His eye brows are really filling out and getting quite adorably bushy, and his golden lashes are … Continue reading The day we’ve all been waiting for →

Well, Zion coded (again) today. I was doing his daily trach tie change with the nurse and simply didn't obey my gut. After cleaning and getting his new ties on, I tightened them (it took a few tries as always). THEN I realized I forgot to put the new Mepilex pad around his trach before … Continue reading A Father’s Day gut check →