I coined this term today, because it is a real thing. Omahappiness | oma'hapēnes | (noun) - the joy that one experiences when they arrive at Omaha Children's and realize how much more wonderful this place is than any other hospital: I have been full of Omahappiness since arriving here. It’s been quite a trying … Continue reading Omahappiness 🙂 →

Thank you everyone for your perpetual prayers for Zion! Today he is doing okay. But boy is this journey all over the place. By the time I get around to writing these blog updates his status can change multiple times! We are definitely developing a thick skin for getting bad news. A few days ago … Continue reading Bumps in the road →

Exodus 15:13 says... You in Your mercy have lead forth the people whom You have redeemed; You have guided them in Your strength to Your holy habitation. I'm comforted by this scripture as we continue on our journey with Zion because I know that the Lord is who is leading and guiding us every step … Continue reading A sweet reunion →

Here's a small 14th century chapel in Wells, England where prayers were lifted by our Grecian friends in the faith for Zion on the day of his surgery... the sweet aroma of prayers is floating up from around the globe as our Zion turns 100 days old today! Here are some smiles and yawns from … Continue reading 100 →

A gift for Zion from our friends Suzy & Eric - a teddy bearing mommy's nickname for Zion 🙂 We continue to THANK everyone for all the prayers you are still lifting up for our child. The last 24 hrs have been very busy, but when checking in on social media it's been overwhelming to … Continue reading Death couldn’t hold him →

Zion John is now 3 months old! Glory to God! And he has also doubled his birth weight as he's packed on 10lbs and 8 oz! So far people are guessing he might end up a RED head?! His eye brows are really filling out and getting quite adorably bushy, and his golden lashes are … Continue reading The day we’ve all been waiting for →

Well, Zion coded (again) today. I was doing his daily trach tie change with the nurse and simply didn't obey my gut. After cleaning and getting his new ties on, I tightened them (it took a few tries as always). THEN I realized I forgot to put the new Mepilex pad around his trach before … Continue reading A Father’s Day gut check →

Why did I name this blog post the way I did you ask? Because Trisomy 18 is, in the words Forrest Gump, "like a box of chocolates. You never know what you're gonna get!" Every T-18 baby is different. And for a baby with this genetic condition, every DAY is also different and unique. It … Continue reading Box of chocolates →