The days after Zion’s transition to Heaven were very full and busy with planning and hosting family and friends from out of town. With this being my first time ever planning a funeral, I can compare it to planning for a wedding in a way, just on a somewhat smaller scale. It’s too bad that … Continue reading A celebration of Zion’s life
Those were the number of days written in the Lamb’s book of life for Zion John Coutouzis. 503 glorious days. Zion has had three colds in his little lifetime, including this recent episode. We knew that he would have some hard moments during his recovery, but never could I have imagined that this particular cold … Continue reading 503 days 🙂
So please pray. Little Zion has been thriving at home until catching a simple cold from his brother and sister a few days ago. For a child with severe pulmonary hypertension, a simple cold can be deadly. We had him brought by ambulance to the hospital a few days ago when we were having trouble … Continue reading Zion’s life hangs in the balance…
“It’s like when Zion came home, the world changed.” Our nurse said this the first day she came to work with us at home. I couldn’t agree more. The timing of how this all happened with Zion coming home has been surreal. So much has been going on both in our home and outside in … Continue reading Home in the nick of time
Happy Birthday Zion…you don't know me, you don't know anything going on in the world right now at the tender age of 1 - but you are giving me so much strength right now……You are amazing and I thank God for you little angel!(Written by one of Zion’s faithful friends) It seems surreal that we … Continue reading A happy first birthday in home sweet home
Today was the day! Discharge day! But the day has come and gone and Zion is not here at home with us - he is still in the hospital. Long story short, the hospital wasn’t able to get Zion’s most important (pulmonary hypertension) medication straightened out with our insurance in time, so he had to … Continue reading His manifold ways
On the 18th of February, our little “punkin” reached eleven months old. Hallelujah! We have come so far with Zion as his first birthday is now officially in close sight! Lately, the medical team all seem to repeat the same thing, “He’s getting so big!” Zion is continuing to grow and is currently 20 adorable … Continue reading We see the light!!!
Today is February 4th. I'm sure many are wondering if Zion made it home today. Well, the short answer is, "No". The nursing agency wasn't able to get us staffed with the nursing hours that we needed in time, so Zion's departure has been delayed to an unclear date, possibly falling in the week after … Continue reading Praying for perseverance
It’s official, Zion has a DISCHARGE DATE on the books - February 4th it is! It's hard to believe this moment has finally arrived! Now I must temper this amazing news by also sharing that this doesn’t necessarily mean that Zion is guaranteed to go home on this day, because we must first have our … Continue reading February 4th!!!
We hope everyone reading this had a blessed and Merry CHRISTmas! We stayed local (since that's all we can do now with Zion being in the hospital) and we enjoyed Christmas with just our little family (minus Zion... we took him his presents which we helped him open at the hospital). After posting my last … Continue reading Zion’s first Noel