The title of this post is fitting in so many ways. I have some exciting updates that I wanted to share. Overall, Zion is doing very well since my last post and is growing well. As of yesterday, he weighed in at 8 lbs, 10.9 oz! He's getting very close to the weight he would … Continue reading God’s glory is on display
Practice makes perfect
With Trisomy 18, if you've seen one baby, you've seen one baby. Every baby with this condition responds differently. I have also learned that things can change in an instant - so it definitely keeps you on your toes. Zion has had good days and bad days. There really is no rhyme or reason to … Continue reading Practice makes perfect
Snuggles, “high sats” & rainbow surprises
As it's often said, God is a God of details, in that even a big God like Him cares about the little details of our lives. He is continuing to show our family every day that He hasn't forgotten about us. After we woke up the other day and George had left for work, he … Continue reading Snuggles, “high sats” & rainbow surprises
hills and valleys
Today we had yet another meal dropped off (this makes almost 30 meals we have been blessed with!) We enjoyed some yummy homemade pizzas as well as a prepped spaghetti dinner we can simply heat up for tomorrow. It’s incredible how much our load has been lightened by the loving acts of so many. And … Continue reading hills and valleys
It’s a new day
Thank you for praying everyone! George and I had a meeting prior to Zion's surgery with a room full of various doctors and hospital workers. The purpose of the meeting was to ensure that we knew what we were getting into when deciding to allow our child to have a tracheostomy. The doctor who lead … Continue reading It’s a new day
Surgery date is set!
It is official. Our boy will have a double surgery this upcoming Thursday - he will have a tracheostomy (the breathing tube put directly into his neck) and will also get a "G tube" (a feeding tube put directly into his stomach). This means that when Zion returns from surgery his face and nose will … Continue reading Surgery date is set!
Another new chapter
My Heavenly Father is so loving. Just like an earthly father would, sometimes He withholds information that might be too stressful or burdensome for His child... Zion is now recovering from his big bronchoscopy procedure this morning and we are grateful that he is stable. I learned when we had our meeting with the doctors … Continue reading Another new chapter
An exciting horizon
Today is Zion's 38th day of life! We are grateful to God because we know that it is the Lord who is sustaining Zion by giving him life and breath every day, just as He does for you and I. We continue to get so many encouraging and edifying notes from our friends around the … Continue reading An exciting horizon
Zion turns 1 month old!
Hallelujah! Jesus said, "With God all things are possible." We are so grateful for each day of life that God gives our son, and celebrated yesterday as he turned one month old! So far we are just starting to get glimpses of his little personality. He apparently is a very "chill" baby (according to most … Continue reading Zion turns 1 month old!
Zion’s life is WORTHY
Apparently I'm not the only one who enjoys watching Zion's videos. Someone told me today that she has watched this video (below) over 20 times and can't stop watching him. She said she sees the anointing on our Zion. I'm in awe watching how his eyes dart to and fro. When he's awake, it's like … Continue reading Zion’s life is WORTHY
Fearfully and Wonderfully ZION 